Blog update

Hey all, I hope everyone is enjoying their Sunday! Today I thought I would take the time to do a little quick update on a few changes I am making on Life with Spina Bifida. A couple of weeks ago I started having more migraines so my doctor told me to double the dosage on [...]


Have you been shamed for taking medication?

When you are disabled or chronically ill taking medication will most likely be part of your life. Medications are what you need to functions but unfortunately, most people who aren't disabled or chronically ill don't understand that. All they see is us popping pills so they will start asking us questions like have you tried [...]

All I want for my birthday is some pain relief!

Supporting someone with chronic pain can be difficult if you don't live in pain. Chronic pain sufferers learn how to cope with their pain and often times because we don't look like we are in pain so people assume we aren't! Friday is my birthday and although it will probably be a pretty good day [...]

Five things you should never say to migraineurs

    It's migraine and headache awareness month! Migraines are invisible and often times misunderstood as a bad headache. Migraines are debilitating and often times you cannot function and can last for up to four to seventy-two hours depending on the severity of the migraine. Headaches can be a huge inconvenience but generally don't last [...]

Mental health awareness: How am I improving my mental health?

May is mental health awareness month and since mental health is something I have been struggling with for the last couple of years I thought I would share with you what I am doing to improve it. Mental is just as important as your physical but sadly most people don't take it as seriously as [...]

When your friends don’t believe your disability exists

My last friendship did not end well because one of my friends did not understand my migraines and she thought they could be easily treated through medication.  Instead of asking me for more information about my disability she assumed Hydrocephalus wasn't a thing and called me psycho and accused me of making up a disability [...]