Hey all, I hope everyone is enjoying their Sunday! Today I thought I would take the time to do a little quick update on a few changes I am making on Life with Spina Bifida. A couple of weeks ago I started having more migraines so my doctor told me to double the dosage on … Continue reading Blog update
When you are disabled or chronically ill taking medication will most likely be part of your life. Medications are what you need to functions but unfortunately, most people who aren't disabled or chronically ill don't understand that. All they see is us popping pills so they will start asking us questions like have you tried … Continue reading Have you been shamed for taking medication?
It is Pain Awareness Month and since living with chronic migraines my days have never been the same. Before I get into anything let me shed some light on some statistics did you know that fifty million people in the United States have chronic pain and twenty million of those people have pain so severe … Continue reading A Day In The Life Of A Chronic Migraineur!
Take a minute to think back to a really long exhausting workday. Do you remember how exhausted you were and how much you just wanted to get into bed? Now imagine having to repeat that same exhausting shift every day for a month with minimal rest. Exhausting right? Well, that is a small fraction of … Continue reading How To Cope With Chronic Fatigue
Next week I am leaving to go on vacation and don't get me wrong I love visiting family but I hate traveling! I don't think I know someone who hates traveling more than I do and now since living with chronic pain, I hate it even more! There are so many things that I have … Continue reading Traveling With Chronic Pain
If you are disabled or chronically ill you probably have heard of the pain scale and are very familiar with it! The pain scale is in pretty much in all doctor's offices so even if you aren't disabled you probably have heard of this method but just in case you haven't I will educate you … Continue reading The pain scale: Why do I loathe this method?
Supporting someone with chronic pain can be difficult if you don't live in pain. Chronic pain sufferers learn how to cope with their pain and often times because we don't look like we are in pain so people assume we aren't! Friday is my birthday and although it will probably be a pretty good day … Continue reading All I want for my birthday is some pain relief!
It's migraine and headache awareness month! Migraines are invisible and often times misunderstood as a bad headache. Migraines are debilitating and often times you cannot function and can last for up to four to seventy-two hours depending on the severity of the migraine. Headaches can be a huge inconvenience but generally don't … Continue reading Five things you should never say to migraineurs
May is mental health awareness month and since mental health is something I have been struggling with for the last couple of years I thought I would share with you what I am doing to improve it. Mental is just as important as your physical but sadly most people don't take it as seriously as … Continue reading Mental health awareness: How am I improving my mental health?
My last friendship did not end well because one of my friends did not understand my migraines and she thought they could be easily treated through medication. Instead of asking me for more information about my disability she assumed Hydrocephalus wasn't a thing and called me psycho and accused me of making up a disability … Continue reading When your friends don’t believe your disability exists
My life has changed in so many ways since living with chronic pain! To be honest I crave the life I had before I started having constant pain because the life I have now is not even remotely similar. I don't have the drive to do a lot of things I used to so there … Continue reading My chronic life: how has it changed?
Over the last month, I have been interning at an employment agency to try to get some job skills that I can put on my job resume. I have done something like this before but it was an entirely different experience because my first job training was not right the fit and, to be honest, … Continue reading Working with chronic pain