Blog update

Hey all, I hope everyone is enjoying their Sunday! Today I thought I would take the time to do a little quick update on a few changes I am making on Life with Spina Bifida. A couple of weeks ago I started having more migraines so my doctor told me to double the dosage on [...]


Have you been shamed for taking medication?

When you are disabled or chronically ill taking medication will most likely be part of your life. Medications are what you need to functions but unfortunately, most people who aren't disabled or chronically ill don't understand that. All they see is us popping pills so they will start asking us questions like have you tried [...]

How to tell your tell child they are not getting better

One of the toughest things other than being by my bedside through countless surgeries and putting my life in the hands of a physician that my parents had to discuss with me was that I was not going to get better. Most parents of disabled children will need to have this conversation because kids will [...]

All I want for my birthday is some pain relief!

Supporting someone with chronic pain can be difficult if you don't live in pain. Chronic pain sufferers learn how to cope with their pain and often times because we don't look like we are in pain so people assume we aren't! Friday is my birthday and although it will probably be a pretty good day [...]

Mental health awareness: How am I improving my mental health?

May is mental health awareness month and since mental health is something I have been struggling with for the last couple of years I thought I would share with you what I am doing to improve it. Mental is just as important as your physical but sadly most people don't take it as seriously as [...]

My support system: What kind of support do you have?

When you are disabled or have chronic pain having a good support system is huge especially on those tough days! I talk about how supportive my online community is so sometimes there may be some confusion on whether or not I have supportive family and friends yes I have a very supportive family and friends! [...]