Blog update

Hey all, I hope everyone is enjoying their Sunday! Today I thought I would take the time to do a little quick update on a few changes I am making on Life with Spina Bifida. A couple of weeks ago I started having more migraines so my doctor told me to double the dosage on … Continue reading Blog update

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Have you been shamed for taking medication?

When you are disabled or chronically ill taking medication will most likely be part of your life. Medications are what you need to functions but unfortunately, most people who aren't disabled or chronically ill don't understand that. All they see is us popping pills so they will start asking us questions like have you tried … Continue reading Have you been shamed for taking medication?

How To Cope With Chronic Fatigue

Take a minute to think back to a really long exhausting workday. Do you remember how exhausted you were and how much you just wanted to get into bed? Now imagine having to repeat that same exhausting shift every day for a month with minimal rest. Exhausting right? Well, that is a small fraction of … Continue reading How To Cope With Chronic Fatigue

I deleted all my personal accounts! Why?

Just before I went on vacation I deleted all my personal social media accounts and lots of people of been wondering why? Blogging can take more time than most people realize and when you have personal accounts you have to manage on time of that it can take away the little time you do have … Continue reading I deleted all my personal accounts! Why?

Traveling With Chronic Pain

Next week I am leaving to go on vacation and don't get me wrong I love visiting family but I hate traveling! I don't think I know someone who hates traveling more than I do and now since living with chronic pain, I hate it even more! There are so many things that I have … Continue reading Traveling With Chronic Pain

How to tell your tell child they are not getting better

One of the toughest things other than being by my bedside through countless surgeries and putting my life in the hands of a physician that my parents had to discuss with me was that I was not going to get better. Most parents of disabled children will need to have this conversation because kids will … Continue reading How to tell your tell child they are not getting better

The pain scale: Why do I loathe this method?

If you are disabled or chronically ill you probably have heard of the pain scale and are very familiar with it! The pain scale is in pretty much in all doctor's offices so even if you aren't disabled you probably have heard of this method but just in case you haven't I will educate you … Continue reading The pain scale: Why do I loathe this method?

All I want for my birthday is some pain relief!

Supporting someone with chronic pain can be difficult if you don't live in pain. Chronic pain sufferers learn how to cope with their pain and often times because we don't look like we are in pain so people assume we aren't! Friday is my birthday and although it will probably be a pretty good day … Continue reading All I want for my birthday is some pain relief!

Mental health awareness: How am I improving my mental health?

May is mental health awareness month and since mental health is something I have been struggling with for the last couple of years I thought I would share with you what I am doing to improve it. Mental is just as important as your physical but sadly most people don't take it as seriously as … Continue reading Mental health awareness: How am I improving my mental health?

My support system: What kind of support do you have?

When you are disabled or have chronic pain having a good support system is huge especially on those tough days! I talk about how supportive my online community is so sometimes there may be some confusion on whether or not I have supportive family and friends yes I have a very supportive family and friends! … Continue reading My support system: What kind of support do you have?

My chronic life: how has it changed?

My life has changed in so many ways since living with chronic pain! To be honest I crave the life I had before I started having constant pain because the life I have now is not even remotely similar. I don't have the drive to do a lot of things I used to so there … Continue reading My chronic life: how has it changed?

Working with chronic pain

Over the last month, I have been interning at an employment agency to try to get some job skills that I can put on my job resume. I have done something like this before but it was an entirely different experience because my first job training was not right the fit and, to be honest, … Continue reading Working with chronic pain