No one likes to hear that they need surgery but unfortunately, some of us have to go through quite a few to keep our health from deteriorating! Surgery can cause a lot of anxiety and sometimes it can be tempting to either avoid it altogether or cancel it at the last minute by coming up … Continue reading Calming nerves before surgery
When you are disabled there are some things you are more aware of than abled person is because you have to be. Since abled people don't struggle as much as people with physical disabilities sometimes they make the life a person with a physical disability harder with realizing it. A disaster can happen to anyone … Continue reading Things you could be doing that could be making a disabled person’s life harder
Sometimes when I am talking with another wheelchair user the first thing that comes to mind is "I also have Spina Bifida. Some people think that if we have the same disability we can connect better with each and will have more to talk about. What some people don't realize is when you are lying … Continue reading How I know you are lying about your Spina Bifida diagnosis
When you are disabled or chronically ill people will give you advice all the time! Sometimes it's good advice that you may want to take and sometimes it is absolutely terrible advice that I would highly suggest that you don't take. Some people just want to help but they don't realize they are not helping! … Continue reading Bad advice people have given me
When you are disabled or chronically ill taking medication will most likely be part of your life. Medications are what you need to functions but unfortunately, most people who aren't disabled or chronically ill don't understand that. All they see is us popping pills so they will start asking us questions like have you tried … Continue reading Have you been shamed for taking medication?
Whenever I am out and people see my wheelchair usually someone's first instinct is your disability doesn't define who you are or you can do anything you put your mind to. Yes, I'll give you that my disability doesn't define who I am as a person. What I will never understand is why you would … Continue reading A few things that my disability has taken from me
Prepping for a hurricane when you are disabled can cause a lot of anxiety. There is a lot of things disabled people have to think about that abled do not and it makes a lot of people nervous. Within the next couple of days, hurricane Dorian is expected to hit Florida(which is the area I … Continue reading Prepping for hurricanes when you’re disabled
When I was in school I always felt left out because there was always some activity I couldn't do. Very rarely were their appropriate modifications so most of the time I just ended up watching my classmates do some fun activity. Finding friends was difficult because my classmates always thought I was the weird girl … Continue reading How teachers can better connect with their disabled students
Finding a fitness routine when you are abled is difficult but when you are disabled it can be even more challenging. For that reason, some disabled people don't work out because it's such a hassle. Sometimes a disabled person will put more effort into finding the right workout routine and less time enjoying the process! … Continue reading How to create a fitness routine when you’re disabled
Next week I am leaving to go on vacation and don't get me wrong I love visiting family but I hate traveling! I don't think I know someone who hates traveling more than I do and now since living with chronic pain, I hate it even more! There are so many things that I have … Continue reading Traveling With Chronic Pain
One of the toughest things other than being by my bedside through countless surgeries and putting my life in the hands of a physician that my parents had to discuss with me was that I was not going to get better. Most parents of disabled children will need to have this conversation because kids will … Continue reading How to tell your tell child they are not getting better
If you are disabled or chronically ill you probably have heard of the pain scale and are very familiar with it! The pain scale is in pretty much in all doctor's offices so even if you aren't disabled you probably have heard of this method but just in case you haven't I will educate you … Continue reading The pain scale: Why do I loathe this method?